Mother's Day Connection

[caption id="attachment_7270" align="alignright" width="300"] My first Mother's Day- 2006[/caption]This past weekend I celebrated my 9th Mother's Day. There is nothing I wanted more in this world than to be a mother and there is nothing I cherish more than my daughter, but Mother's Day can be a tad bitter sweet.

I have learned how to process all of my feelings like jealousy, anger and sadness when it comes to the life I expected. It took many years, but with lots of help and support I was able to come to peace with my "new normal". I still think about the things my family can't do, the things we miss out on, especially the things my daughter will never get to experience. I have learned to be happy for my friends and family that are living the lives I planned. I have learned to focus on what we DO have and what we CAN do and to celebrate EVERYTHING!

Holidays are still tough, and I think they always will be. The traditions, the pageantry, all of it is just another reminder that I'm not like my friends and family, at least not the ones I have known all my life. I am however, just like my new(ish) friends and family. I share a bond with my new community that makes us feel like we are family- sisters by circumstance.

[caption id="attachment_7279" align="alignleft" width="250"] "Snuggle Cam" Mother's Day 2015[/caption]This community, my new family, it's you- all of you! I logged on to facebook on Sunday, as I do everyday, and I started to feel a little sad as I scrolled through my newsfeed. I saw so many post of my friends with their kids out doing special things for Mother's Day. I read each post and felt happy that they were having special days, but also a little sad. However, as I continued to scroll through my feed I saw other posts that made me feel connected to the rest of the world. A connection we all long for- a way to feel like we ARE normal. Some of you, my MOM friends, were posting pics of your miracles snuggled up on your laps, tubes connected, sitting in awkward positions in order to support their needs and your faces filled with so much love. You all were doing exactly what I was doing. Snuggles with my daughter are my favorite part of the day. On some days we snuggle almost the entire time. For Mother's Day she was in a good mood and we snuggled on the couch watching chick flix and having our girl talk (she is non-verbal, but we still have our chats). It was a great day, I too was filled with so much love and I was happy. I don't know why I let the pictures of moms playing in the park with their kids make me feel like my Mother's Day was any less special. Truth be told, I think mine was MORE special. I thank all of you for reminding me of that.

I hope that all of you had a wonderful Mother's Day, and that you all got some snuggle time with your miracles.

What I want this Mother’s Day

I remember my first Mother’s Day well.  I was so excited to finally be celebrating as a new mom.  In my mind I built it up to be this glorious, amazing day.  I would sleep in late, be served breakfast in bed, and leisurely make my way to the living room.  The laundry would be done and folded, the house would be immaculate.  Grocery shopping would be done for the week.  My daughter would have just had a bath, and be clean and happy.  I'd go get a massage and have a mani/pedi.  My hair would look perfect (because I'd actually do it) and I'd look and feel great about my post-baby body.  I'd receive a beautiful card and a thoughtful gift.  Dinner would be a culinary masterpiece and a layered chocolate cake would top things off.  I'd get to bed early between nice clean sheets and have a full night's rest.



 

 

And ..... that's not quite how it went.

 

 

On my first Mother's Day, my daughter had only been home from the NICU for 5 weeks, and I wouldn't leave her side.  She was still on oxygen and an apnea monitor, and I didn't feel comfortable with anyone else watching her.  My husband and I were also the only ones who could feed her, since we had to feel whether she was still breathing, and sometimes rub her back to stimulate her.  On top of that, I had postpartum that was so awful at times that I couldn't get out of bed, much less shower and go out.  So we decided to stay in for my first Mother's Day.  I didn't sleep in.  I barely slept at all with the apnea monitor beeping all night and my daughter crying.  My husband tried so hard to make sure I had a good day, and he made a huge effort to make me an awesome dinner.  But he'd never cooked lobster before.  We learned he's not real good at it.  He also made shrimp cocktail, but the shrimp weren't thawed.  There was no cocktail sauce.  The sink was full of dirty dishes.  I never showered and my hair never got done.  My nails?  Yeah, right.  I was depressed and upset with my post-baby body.  Dirty laundry was everywhere.  The house was a mess.  My daughter de-statted the entire day and refluxed/projectile vomited more times than I could count.  I was covered in puke most of the day.  So was the house.  She screamed through every feeding (oral aversion, G-tube wasn't in the picture yet).  By the time we ate the lobster it was cold and gross.  I cried a lot and was horribly depressed.  The day was actually somewhat of a disaster.  Nothing went right.  Or rather, nothing went the way I thought it was supposed to.

 

You see, I built up this idea in my head of the perfect Mother's Day that was impossible and out of reach.  It set unrealistic expectations on me, my husband, and my daughter.  I had this picture of how it was supposed to be, and when the day didn't live up to that, it left me feeling empty and disappointed.  I was angry and frustrated.  I only got one first Mother's Day and I thought it was wrecked.  But I failed to realize that it wasn't wrecked, that was just the way I was viewing it.

 

I am blessed with an incredibly loving, understanding, and supportive husband who tried so hard to make it a memorable day, but I failed to realize that he was also navigating this scary, uncharted journey through special-needs parenthood, and he had equally difficult moments as me.  I was still on maternity leave, he was back at work.  He was also trying to take care of me with my awful post-partum days and had a lot on his plate.  Expecting all those things to be done was unrealistic and selfish on my part.  And expecting my daughter to suddenly have a great day when we knew she had lots of issues and needed extra care was equally unrealistic.  I couldn't turn my 2lb preemie into a miraculously healthy baby just so I could have a good Mother's Day.  I couldn't expect her to feed great, not need her oxygen, or not de-stat.  She was still hooked to tubes and wires, she still hated the bottle, she was still an a-typical child recovering from a very difficult, very early birth with a lot of health issues. It was wrong and unfair of me to expect anything different.

 

But I couldn't realize that right away.  For a long time I was too blind to see all the good things that happened on that Mother's Day, I was just so focused and preoccupied on everything being 'perfect.'  Looking back on that day now, we can laugh (it took a while).  It was a comedy of errors, really.  Time and perspective has helped me appreciate all the things that were GOOD that happened.  My daughter was alive.  Worth repeating: My daughter was alive.  She made it through major surgery at 10 days old.  We weren't in the NICU any longer.  My daughter was at home, and in my arms.  I had a loving, supportive husband and father to my baby.  I was surrounded by the two people I love more than anything in this world.  We had wonderful, loving family who lived close-by.  We had jobs, cars, food, and a roof over our heads.  Who cares if there wasn't a crafty card with my daughter's handprint or a gift waiting for me?  Who cares if dinner sucked, or I didn't shower or get pampered, or didn't sleep in?   Who cares if the house and I were covered in puke?  (That became a new norm for us anyways).  What mattered is that the two people in this world who made me a mom - my husband and my daughter – were by my side.  I was surrounded by them and their love on my first Mother's Day.  That's what mattered.

 

When I was admitted to the hospital at 26 weeks gestation in preterm labor, my husband had packed some of my books to keep me occupied - including "What to Expect When You're Expecting."  As I unpacked in my hospital room, I saw the book and it upset me.  I asked him to take it back home.  It didn't apply anymore.  I could no longer expect anything I read in that book, or any other book for that matter.  I no longer knew what to expect at all.  I had to take my preconceived notions and ideas of how it was supposed to be, and throw them out the window.  And that's what I've been learning to do for the last 2 1/2 years.  It's not an easy feat.  It can actually be very painful at times.

 

There's a quote that says "What screws us up most in life is the picture in our head of how it's supposed to be."  With Mother's Day, I had to take the idea in my head of how it's supposed to be - or how I thought it should be - and just throw it out the window.  Because it didn't apply anymore.  Because not everything goes how you think it's going to.  As MOMs, we all know that.  We are all on unexpected, unanticipated journeys in this life and have had to throw our ideas of how it's supposed to be away.  That's a really, really difficult thing to do at times.  It's also a very emotional thing to do, because we have to let go of the way we wanted things to be.  That can mean letting go of certain plans for ourselves, or for our children.  But I think letting go of the picture in our head of how it's supposed to be, is the only real way to see and appreciate the good things that we DO have.  I had to let go of my idea of the perfect Mother's Day in order to appreciate the good and beautiful things that did happen on that day, and to appreciate how lucky I was to have my daughter.

 

For this Mother’s Day, do I want a clean house?  Sure.  A nice dinner?  Absolutely!  Even just a card?  I’d love one.  But if I don’t get any of those things, that’s ok.   I may never get a handprint card from my daughter, because she screams when there's stuff on her hands (sensory issues).  Having a clean house with a 2 year old is IMPOSSIBLE.  And enjoying a nice meal?  She won't sit at the table for more than five minutes and she'll only eat ketchup or barbeque sauce (feeding issues), which ends up everywhere.



 

Our society has made this holiday into a day of unrealistic expectations, which only lead to disappointment.  Instead of focusing on spa appointments, cute crafts, a clean house, or a gourmet meal, I’d rather just focus on the beautiful people in my life who enabled me to celebrate this holiday – the people who made me a mom.  I don’t want to have my heart set on ridiculous expectations of what this day should hold.  I don’t want to focus on preconceived notions set by people who haven’t faced the same struggles that we have, who don't understand the issues we face.  I’d rather remember the beautiful miracle that I have in my daughter, and remember how far we’ve come.  She reminds me just how precious life is, to celebrate every milestone with joy (no matter how late), to live in the moment, and to never take anything for granted.  I feel honored this Mother’s Day to be her mom, she has taught me so much.  All I need on this holiday is to look into her eyes and see her smile.

 

Plus, who wants crappy lobster anyways?

 

 I would like to wish each and every MOM a truly wonderful and happy Mother's Day this year.  May it be filled with joy and love.